Resources

Parents’ Experiences of Children’s Health Care for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

This is an Accepted Manuscript of an article published by Taylor & Francis in Children’s Health Care on 25th September 2021, available online: http://www.tandfonline.com/10.1080/02739615.2021.1960165

Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.

The Role of Cell Adhesion and Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

The Beighton Score as a measure of generalised joint hypermobility

The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

A charity for people affected by Postural Tachycardia Syndrome (PoTS)

The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

Shared decision making maternity tool for pregnancy notes

Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017

Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.