Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

  • Websites
    Websites

    British Heart Foundation

    The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

  • Websites
    Websites

    PoTS UK

    A charity for people affected by Postural Tachycardia Syndrome (PoTS)

  • Websites
    Websites

    RCM i-learn module

    The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

  • Publications
    Publications

    Midwifery journal research publication

    Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

  • Websites
    Websites

    RCGP toolkit podcast

    Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

  • Tools
    Tools

    Maternity tool

    Shared decision making maternity tool for pregnancy notes

  • Videos
    Videos

    HMSA & EDS Support UK Management and Wellbeing Patient Conference

    Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017

  • Videos
    Videos

    EDS Maternity – Pint Of Science film

    Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.

  • Videos
    Videos

    Understanding Gastrointestinal Involvement and EDS-HSD

    Qasim Aziz discusses “Understanding Gastrointestinal Involvement and EDS-HSD”

  • Videos
    Videos

    Why we are doing research on EDS maternity

    Short film about why we started doing our research on EDS Maternity

  • Videos
    Videos

    hEDS during pregnancy, birth and beyond

    Presentation at the Northern Maternity & Midwifery Festival 2019.

  • Publications
    Publications

    EDS Maternity Literature Review Paper

    Output from the EDS Maternity literature review project.

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