We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.
A charity for people affected by Postural Tachycardia Syndrome (PoTS)
The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing
Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study
Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.
Shared decision making maternity tool for pregnancy notes
Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017
Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.
Qasim Aziz discusses “Understanding Gastrointestinal Involvement and EDS-HSD”
Short film about why we started doing our research on EDS Maternity
Presentation at the Northern Maternity & Midwifery Festival 2019.
Output from the EDS Maternity literature review project.
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