We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
Professor Shea Palmer’s inaugural lecture at Coventry University on himself and his research progression on symptomatic hypermobility. It covers research that Shea and colleagues have carried out on hEDS/HSD and where he would like to continue research moving forwards.
Here is the infomercial that we co-created about hypermobile Ehlers-Danlos syndrome and hypermobility Spectrum Disorders. It also talks about considerations during pregnancy.
The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!
An interview in Massage and Fitness Magazine with Sabeeha Malek, Dr Gemma Pearce, and Dr Emma Reinhold about their work on the Beighton Score review paper.
Parents’ Experiences of Children’s Health Care for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.
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