We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
Protocol update for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study
The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!
An interview in Massage and Fitness Magazine with Sabeeha Malek, Dr Gemma Pearce, and Dr Emma Reinhold about their work on the Beighton Score review paper.
Parents’ Experiences of Children’s Health Care for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
This is an Accepted Manuscript of an article published by Taylor & Francis in Children’s Health Care on 25th September 2021, available online: http://www.tandfonline.com/10.1080/02739615.2021.1960165
Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.
The Role of Cell Adhesion and Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
Poster on Women’s experiences of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders during pregnancy, birth and beyond.
The development of synchronous text-based instant messaging as an online interviewing tool.
Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study
The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study
The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.
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