Resources

The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study

The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.

A charity for people affected by Postural Tachycardia Syndrome (PoTS)

The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

Shared decision making maternity tool for pregnancy notes

Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017

Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.

Qasim Aziz discusses “Understanding Gastrointestinal Involvement and EDS-HSD”

Short film about why we started doing our research on EDS Maternity