Resources

Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.

The Role of Cell Adhesion and Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

The Beighton Score as a measure of generalised joint hypermobility and this publication reviews it’s use in practice and research.

Poster on Women’s experiences of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders during pregnancy, birth and beyond.

The development of synchronous text-based instant messaging as an online interviewing tool.

Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study

The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study

The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.

A charity for people affected by Postural Tachycardia Syndrome (PoTS)

The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study