We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.
Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.
The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing
Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study
Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.
Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017
Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.
Qasim Aziz discusses “Understanding Gastrointestinal Involvement and EDS-HSD”
Short film about why we started doing our research on EDS Maternity
Presentation at the Northern Maternity & Midwifery Festival 2019.
Follow us for the latest on hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorders.