Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

  • Documents
    Documents

    EDS & Pregnancy Poster

    Poster on Women’s experiences of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders during pregnancy, birth and beyond.

  • Publications
    Publications

    Text-based instant messaging as an online interviewing tool.

    The development of synchronous text-based instant messaging as an online interviewing tool.

  • Publications
    Publications

    PULSE protocol

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study

  • Websites
    Websites

    CU PULSE website

    The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study

  • Websites
    Websites

    British Heart Foundation

    The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

  • Websites
    Websites

    UHCW PULSE press release

    Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.

  • Websites
    Websites

    PoTS UK

    A charity for people affected by Postural Tachycardia Syndrome (PoTS)

  • Websites
    Websites

    RCM i-learn module

    The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

  • Publications
    Publications

    EDS maternity interview research publication

    Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

  • Websites
    Websites

    RCGP toolkit podcast

    Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

  • Tools
    Tools

    Maternity tool

    Shared decision making maternity tool for pregnancy notes

  • Videos
    Videos

    HMSA & EDS Support UK Management and Wellbeing Patient Conference

    Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017

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