We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
Poster on Women’s experiences of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders during pregnancy, birth and beyond.
The development of synchronous text-based instant messaging as an online interviewing tool.
Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study
The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study
The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.
Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.
The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing
Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study
Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.
Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017
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