Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

  • Websites
    Websites

    RCGP toolkit podcast

    Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

  • Tools
    Tools

    Maternity tool

    Shared decision making maternity tool for pregnancy notes

  • Videos
    Videos

    HMSA & EDS Support UK Management and Wellbeing Patient Conference

    Dr Emma Reinhold at the HMSA & EDS Support UK Management and Wellbeing Patient Conference 2017

  • Videos
    Videos

    EDS Maternity – Pint Of Science film

    Public engagement event presenting what we know so far about maternity and hypermobile Ehlers-danlos Syndrome and related diagnoses.

  • Videos
    Videos

    Understanding Gastrointestinal Involvement and EDS-HSD

    Qasim Aziz discusses “Understanding Gastrointestinal Involvement and EDS-HSD”

  • Videos
    Videos

    Why we are doing research on EDS maternity

    Short film about why we started doing our research on EDS Maternity

  • Videos
    Videos

    hEDS during pregnancy, birth and beyond

    Presentation at the Northern Maternity & Midwifery Festival 2019.

  • Publications
    Publications

    EDS Maternity Literature Review Paper

    Output from the EDS Maternity literature review project.

  • Tools
    Tools

    EDS GP Toolkit

    EDS toolkit for General Practitioners (and other healthcare professionals)

  • Websites
    Websites

    Hypermobility Syndromes Association

    Hypermobility Syndromes Association

  • Websites
    Websites

    Ehlers Danlos Support UK

    Ehlers Danlos Support UK website

  • Websites
    Websites

    Ehlers Danlos Society

    The Ehlers-Danlos Society is a global community dedicated to saving and improving the lives of those affected by the EDS, HSD, and related conditions.

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