Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

  • Publications
    Publications

    Updated PULSE protocol

    Protocol update for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study

  • Publications
    Publications

    Updated EDS maternity care considerations (2021)

    The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!

  • Publications
    Publications

    Parents’ experiences of children’s health care for EDS/HSD in the UK

    Parents’ Experiences of Children’s Health Care for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

    This is an Accepted Manuscript of an article published by Taylor & Francis in Children’s Health Care on 25th September 2021, available online: http://www.tandfonline.com/10.1080/02739615.2021.1960165

  • Publications
    Publications

    Pathogenesis of EDS/HSD paper

    The Role of Cell Adhesion and Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

  • Publications
    Publications

    Beighton Score Review Paper

    The Beighton Score as a measure of generalised joint hypermobility

  • Publications
    Publications

    Text-based instant messaging as an online interviewing tool.

    The development of synchronous text-based instant messaging as an online interviewing tool.

  • Publications
    Publications

    PULSE protocol

    Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study

  • Publications
    Publications

    EDS maternity interview research publication

    Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study

  • Publications
    Publications

    EDS Maternity Literature Review Paper

    Output from the EDS Maternity literature review project.

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