We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
Protocol update for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study
The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!
Parents’ Experiences of Children’s Health Care for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders
This is an Accepted Manuscript of an article published by Taylor & Francis in Children’s Health Care on 25th September 2021, available online: http://www.tandfonline.com/10.1080/02739615.2021.1960165
The Role of Cell Adhesion and Cytoskeleton Dynamics in the Pathogenesis of the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
The development of synchronous text-based instant messaging as an online interviewing tool.
Protocol for a randomised controlled feasibility trial of exercise rehabilitation for people with postural tachycardia syndrome: the PULSE study
Understanding hypermobile Ehlers-Danlos syndrome and Hypermobility Spectrum Disorders in the context of childbearing: An international qualitative study
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