Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

  • Websites
    Websites

    hEDS & HSD Infomercial

    Here is the infomercial that we co-created about hypermobile Ehlers-Danlos syndrome and hypermobility Spectrum Disorders. It also talks about considerations during pregnancy.

  • Publications
    Publications

    Updated EDS maternity care considerations (2021)

    The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!

  • Websites
    Websites

    Interview with Massage & Fitness Magazine

    An interview in Massage and Fitness Magazine with Sabeeha Malek, Dr Gemma Pearce, and Dr Emma Reinhold about their work on the Beighton Score review paper.

  • Websites
    Websites

    STARS – Syncope Trust And Reflex anoxic Seizures

    Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.

  • Websites
    Websites

    CU PULSE website

    The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study

  • Websites
    Websites

    British Heart Foundation

    The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

  • Websites
    Websites

    UHCW PULSE press release

    Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.

  • Websites
    Websites

    PoTS UK

    A charity for people affected by Postural Tachycardia Syndrome (PoTS)

  • Websites
    Websites

    RCM i-learn module

    The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

  • Websites
    Websites

    RCGP toolkit podcast

    Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

  • Websites
    Websites

    Hypermobility Syndromes Association

    Hypermobility Syndromes Association

  • Websites
    Websites

    Ehlers Danlos Support UK

    Ehlers Danlos Support UK website

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