We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.
Here is the infomercial that we co-created about hypermobile Ehlers-Danlos syndrome and hypermobility Spectrum Disorders. It also talks about considerations during pregnancy.
The British Journal of Midwifery have kindly provided us with a free open access link to this article to host on this website. We are extremely grateful!
An interview in Massage and Fitness Magazine with Sabeeha Malek, Dr Gemma Pearce, and Dr Emma Reinhold about their work on the Beighton Score review paper.
Ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.
The official page for the PostUraL tachycardia Syndrome Exercise (PULSE) study
The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.
Press release announcing funding for the PostUraL tachycardia Syndrome Exercise (PULSE) study.
The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing
Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.
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