Resources

We’ve collated useful documents, videos, support and more for anyone interested in, working with, or suffering from hEDS or HSD.

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    Websites

    British Heart Foundation

    The BHF is a charity that funds vital research into heart disease, stroke, and vascular dementia, and their risk factors.

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    Websites

    PoTS UK

    A charity for people affected by Postural Tachycardia Syndrome (PoTS)

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    Websites

    RCM i-learn module

    The Royal College of Midwives (RCM) i-learn module for hEDS/HSD & related disorders in childbearing

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    Websites

    RCGP toolkit podcast

    Emma Reinhold, RCGP Clinical Champion for Ehlers-Danlos syndromes, is joined by RCGP Chair Professor Helen Stokes-Lampard.

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    Websites

    Hypermobility Syndromes Association

    Hypermobility Syndromes Association

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    Websites

    Ehlers Danlos Support UK

    Ehlers Danlos Support UK website

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    Websites

    Ehlers Danlos Society

    The Ehlers-Danlos Society is a global community dedicated to saving and improving the lives of those affected by the EDS, HSD, and related conditions.

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