Meet the team

Emma spearheaded the RCGP #EDSToolkit project. She is passionate about improving all aspects of the patient experience in hEDS/HSD through research and policy work.

Sabeeha is a PhD student and researcher at the University of Warwick, and also interned at hEDStogether. Her research focuses on the role of cell adhesion and cell biomechanics in EDS.

Ben is a graphic designer based in Manchester who runs his own independent design studio specialising in branding and visual identity. He enjoys football and birdwatching in his spare time.

Lauren works as a Research Assistant at Coventry University. She previously completed an MSc in Health Psychology, which included hEDS/HSD related research.

Helen is a British Heart Foundation PhD nursing fellow and is currently involved in developing a supported self-management programme for people with POTS.

Gordon worked as a Clinical Exercise Physiologist in Cardiopulmonary Rehabilitation before completing a PhD and embarking on a clinical academic career specialising in exercise rehabilitation interventions.

Darius is a biophysicist at the University of Warwick. His research interests lie in better understanding the effects of mechanical forces on cell surface biology.

Shea is Professor of Allied Health in the ‘Centre for Care Excellence’ and has a long history of doing research to better understand and manage hEDS/HSD.

Anna is a physiotherapist who specialises in the treatment of HSD/hEDS. She co-owns Physiocure and is embarking on a PhD with the University of Coventry. Her research will be focusing on the role of Dynamic Movement Orthoses for the HSD/hEDS patient.