Meet the team

Emma spearheaded the RCGP #EDSToolkit project. She is passionate about improving all aspects of the patient experience in hEDS/HSD through research and policy work.

Sabeeha is a PhD student and researcher at the University of Warwick, and also interned at hEDStogether. Her research focuses on the role of cell adhesion and cell biomechanics in EDS.

Ben is a graphic designer based in Manchester who runs his own independent design studio specialising in branding and visual identity. He enjoys football and birdwatching in his spare time.

Lauren works as a Research Assistant at Coventry University. She previously completed an MSc in Health Psychology, which included hEDS/HSD related research.

Helen is a British Heart Foundation PhD nursing fellow and is currently involved in developing a supported self-management programme for people with POTS.

Gordon worked as a Clinical Exercise Physiologist in Cardiopulmonary Rehabilitation before completing a PhD and embarking on a clinical academic career specialising in exercise rehabilitation interventions.

Darius is a biophysicist at the University of Warwick. His research interests lie in better understanding the effects of mechanical forces on cell surface biology.